The Resource Emergence and Evolution of Social Self-management of Parkinson's Disease, Greater Boston Metropolitan Area, 5 states, 2013-2019

Emergence and Evolution of Social Self-management of Parkinson's Disease, Greater Boston Metropolitan Area, 5 states, 2013-2019

Label
Emergence and Evolution of Social Self-management of Parkinson's Disease, Greater Boston Metropolitan Area, 5 states, 2013-2019
Title
Emergence and Evolution of Social Self-management of Parkinson's Disease, Greater Boston Metropolitan Area, 5 states, 2013-2019
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Author
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Summary
The Emergence and Evolution of Social Self-Management of Parkinson's Disease study (SocM-PD) is a mixed-method (quantitative-qualitative) prospective cohort study of how people with Parkinson's disease and their primary caregiver (as available) naturalistically manage chronic disease, wellness and social life in their home and community. Researchers define social self-management as the practices and experiences that ensure personal social comfort while supporting mental and physical well-being. Articulating this model will guide research to identify social factors that are deleterious to or protective of quality of life when living with chronic disease. Parkinson's Disease offers a model for studying the effect of physical disease on the social self management of daily life when physical symptoms affect fundamental social capacities. The overall objective is to understand the emergence and evolution of the trajectories of the self-management of the social lives of people living with Parkinson's disease. The central hypothesis is that expressive capacity predicts systematic change in the pattern of social self-management and quality of life outcomes. Demographic variables include age, gender, ethnicity, income, marital status, education, and employment
http://library.link/vocab/creatorName
  • Tickle-Degnen, Linda
  • Inter-university Consortium for Political and Social Research [distributor]
Label
Emergence and Evolution of Social Self-management of Parkinson's Disease, Greater Boston Metropolitan Area, 5 states, 2013-2019
Instantiates
Publication
Note
  • 2013-10-01--2019-03-31
  • 37631
Control code
ICPSR37631.v3
Governing access note
Access restricted to subscribing institutions
Label
Emergence and Evolution of Social Self-management of Parkinson's Disease, Greater Boston Metropolitan Area, 5 states, 2013-2019
Publication
Note
  • 2013-10-01--2019-03-31
  • 37631
Control code
ICPSR37631.v3
Governing access note
Access restricted to subscribing institutions

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